ParkinsonNeurology services have improved for people living with Parkinson’s disease, results from the largest ever Parkinson’s services audit have revealed.

Now, 62.8% of audited services now seeing more than 75% of their patients in specific clinics (compared with 60% in 2012), while written information about Parkinson’s and Parkinson’s medication is now routinely available all or most of the time at 82.4% of elderly care and neurology clinics.

However, there is still a lack of integrated clinics, with only 12.6% of joint elderly care and neurology clinics being integrated, and only 5.5% of neurology clinics. Also, 5.9% of outpatient clinics are not routinely providing written information about Parkinson’s disease. Additionally, the Patient Reported Experience Measure (PREM) suggests that providing written information in the clinic may not be enough, as only 64.9% of patients feel they are given enough information at diagnosis.

The results were part of the UK Parkinson’s Audit, the largest dataset obtained to date about the quality of care provided to people with Parkinson’s across the UK. The Audit is coordinated by the UK Parkinson’s Excellence Network, a collaboration between health and social care professionals and Parkinson’s UK, underpinned by the voice of people affected by Parkinson’s.  The Audit was developed to address the concerns of professionals, patients and their representatives, the UK wide clinical audit assesses the quality of care provided to people with Parkinson’s, across a range of clinical areas against national guidelines.

The 2015 Audit reports on the care provided to 8,846 people living with Parkinson’s and is the first to include a Patient Reported Experience Measure, obtained by directly surveying patients.

Dr. Anne-Louise Cunnington, clinical lead for the UK Parkinson’s Audit said: “It has been a real privilege to lead on this audit. Many areas of excellent and improved practice have been highlighted - these services should be commended, and their best practice shared with others who can learn from their successes. 

“However some significant shortcomings have also been identified which need to be addressed. With the Excellence Network as the driver of change we must work towards more integrated clinics and ensure patients have enough information to feel in control of their condition. This audit is a call to action and an opportunity to ensure that best practice across Parkinson’s care is in place for each and every person living with Parkinson’s in the UK.”